In Their Own Words: the lived experience of African American breast cancer survivors
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Preliminary discussions between the Center for Health Policy and Ethics (CHPE) faculty and African American women community partners, some of whom are breast cancer survivors, indicated that the significant distress at the time of diagnosis may be universal for all women with breast cancer but the experience may differ from that point on as vital treatment decisions are made. CHPE partnered with My Sister’s Keeper Breast Cancer Support Group for African American Women. A pilot study was conducted to explore the lived experience of African American women in Omaha, Nebraska who are breast cancer survivors relative to received information about treatment options, symptom management, and invitation to participate in clinical trials.